Meeting: Examining Proposals that Provide Access to Care for Patients and Support Research for Rare Diseases

Subcommittee on Health (Committee on Energy and Commerce)

Wednesday, June 14, 2023 (10:30 AM)

Select one
Washington, D.C.

Witnesses

Dr. Elizabeth Cherot, MD, MBA
Senior Vice President and Chief Medical Health Officer, March of Dimes

  • Witness Statement [PDF] Added 08/23/2023 at 02:36 PM
  • Curriculum Vitae [PDF] Added 08/23/2023 at 02:36 PM
  • Responses to Questions for the Record [PDF] Added 08/23/2023 at 02:47 PM

Dr. Alexis A. Thompson, MD, MPH
Chief of Division of Hematology, Elias Schwartz MD Endowed Chair in Hematology

  • Witness Statement [PDF] Added 08/23/2023 at 02:36 PM
  • Questions for the Record, Transmittal Letter [PDF] Added 10/20/2024 at 01:09 AM
  • Curriculum Vitae [PDF] Added 08/23/2023 at 02:36 PM

Dr. Meredithe McNamara, MD, MS, FAAP
Assistant Professor, Yale School of Medicine

  • Witness Statement [PDF] Added 08/23/2023 at 02:36 PM
  • Curriculum Vitae [PDF] Added 08/23/2023 at 02:36 PM
  • Responses to Questions for the Record [PDF] Added 08/23/2023 at 02:47 PM

Dr. Miriam Grossman, MD
Child, Adolescent, and Adult Psychiatrist

  • Witness Statement [PDF] Added 08/23/2023 at 02:36 PM
  • Curriculum Vitae [PDF] Added 08/23/2023 at 02:36 PM
  • Questions for the Record, Transmittal Letter [PDF] Added 10/20/2024 at 01:09 AM

Mr. George Manahan
Parkinson's Advocate and Patient

  • Witness Statement [PDF] Added 08/23/2023 at 02:36 PM
  • Curriculum Vitae [PDF] Added 08/23/2023 at 02:36 PM

Mr. Kevin O'Connor
Assistant to the General President for Government Affairs and Political Action, International Association of Fire Fighters

  • Witness Statement [PDF] Added 08/23/2023 at 02:36 PM
  • Witness Biography [PDF] Added 08/23/2023 at 02:36 PM

Text of Legislation

  • H.R. 3226, the PREEMIE Reauthorization Act of 2023 (Reps. Anna Eshoo, Mariannette Miller-Meeks, Robin Kelly, Jen Kiggans, Lisa Blunt Rochester, and Michael Burgess) [PDF] Added 06/15/2023 at 01:11 PM
  • H.R. 3838, the Preventing Maternal Deaths Reauthorization Act of 2023 (Reps. Michael Burgess, Diana DeGette, Buddy Carter, Robin Kelly, Kat Cammack, and Kathy Castor) [PDF] Added 06/15/2023 at 01:11 PM
  • H.R. 3843, the Action for Dental Health Act of 2023 (Reps. Robin Kelly and Mike Simpson) [PDF] Added 06/15/2023 at 01:11 PM
  • H.R. 3884, the Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 (Reps. Michael Burgess, Danny Davis, and Buddy Carter) [PDF] Added 06/15/2023 at 01:11 PM
  • H.R. 3821, the Firefighter Cancer Registry Reauthorization Act of 2023 (Reps. Bill Pascrell, Brian Fitzpatrick, Steny Hoyer, and Mike Bost) [PDF] Added 06/15/2023 at 01:11 PM
  • H.R. 2365, the National Plan to End Parkinson’s Act (Reps. Gus Bilirakis and Paul Tonko) [PDF] Added 06/15/2023 at 01:11 PM
  • H.R. 3391, the Gabriella Miller Kids First Research Act 2.0 (Reps. Jennifer Wexton, Tom Cole, Debbie Dingell, and Gus Bilirakis) [PDF] Added 06/15/2023 at 01:11 PM
  • H.R. 3887, the Children’s Hospital GME Support Reauthorization Act of 2023 (Rep. Dan Crenshaw) [PDF] Added 06/15/2023 at 01:11 PM
  • H.R. 3836, the Medicaid Primary Care Improvement Act (Reps. Dan Crenshaw, Kim Schrier, Lloyd Smucker, and Earl Blumenauer) [PDF] Added 06/15/2023 at 01:11 PM

Support Documents

  • Hearing Notice [PDF] Added 06/15/2023 at 01:11 PM
  • Public Memo [PDF] Added 06/15/2023 at 01:11 PM
  • Unedited Transcript [PDF] Added 07/14/2023 at 04:08 PM
  • Documents for the Record [PDF] Added 08/23/2023 at 02:43 PM

Member Statements

  • Brett Guthrie Opening Statement [PDF] Added 06/15/2023 at 01:11 PM
  • Cathy McMorris Rodgers Opening Statement [PDF] Added 06/15/2023 at 01:11 PM
  • Michael Burgess Opening Statement [PDF] Added 06/15/2023 at 01:11 PM
  • Anna Eshoo Opening Statement [PDF] Added 08/23/2023 at 02:49 PM
  • Frank Pallone Jr. Opening Statement [PDF] Added 08/23/2023 at 02:49 PM

First Published: June 13, 2023 at 09:46 AM
Last Updated: December 10, 2024 at 05:26 PM