Hearing: "Lives Worth Living: Addressing the Fentanyl Crisis, Protecting Critical Lifelines, and Combatting Discrimination Against Those with Disabilities"

Subcommittee on Health (Committee on Energy and Commerce)

Wednesday, February 1, 2023 (10:00 AM)

2123 RHOB
Washington, D.C.

Witnesses

Panel one

Mr. Kemp Chester
Senior Advisor, Office of National Drug Control Policy

Added 02/21/2023 at 05:19 PM
  • Witness Statement [PDF] Added 02/21/2023 at 05:19 PM
  • Witness Biography [PDF] Added 02/21/2023 at 05:19 PM

Dr. Neeraj Gandotra
Chief Medical Officer, Substance Abuse and Mental Health Services Administration

Added 02/21/2023 at 05:19 PM
  • Witness Statement [PDF] Added 02/21/2023 at 05:19 PM
  • Responses to Questions for the Record [PDF] Added 04/04/2023 at 12:44 PM
  • Witness Biography [PDF] Added 02/21/2023 at 05:19 PM

Mr. Jon C. DeLena
Associate Administrator, Business Operations, Drug Enforcement Administration

Added 02/21/2023 at 05:19 PM
  • Witness Statement [PDF] Added 02/21/2023 at 05:19 PM
  • Responses to Questions for the Record [PDF] Added 02/08/2024 at 11:03 AM
  • Witness Biography [PDF] Added 02/21/2023 at 05:19 PM

Panel two

Ms. Kandi Pickard
President and CEO, National Down Syndrome Society

  • Witness Statement [PDF]
  • Responses to Questions for the Record [PDF] Added 04/04/2023 at 01:28 PM
  • Witness Biography [PDF]

Mr. Frederick Isasi
Executive Director, Families USA

  • Witness Statement [PDF]
  • Supplemental Report on Advancing Health Equity [PDF] Added 04/04/2023 at 01:28 PM
  • Responses to Questions for the Record [PDF] Added 04/04/2023 at 01:28 PM
  • Witness Biography [PDF]

Ms. Molly Cain
Parent Advocate

  • Witness Statement [PDF]
  • Witness Biography [PDF]

Dr. Stephen Loyd
Chief Medical Officer, Cedar Recovery

  • Witness Statement [PDF]
  • Responses to Questions for the Record [PDF] Added 08/02/2023 at 01:19 PM
  • Witness Biography [PDF]

Dr. Timothy Westlake
Emergency Medicine Physician

  • Witness Statement [PDF]
  • Responses to Questions for the Record [PDF] Added 04/04/2023 at 01:28 PM
  • Witness Biography [PDF] Added 04/04/2023 at 01:28 PM

Text of Legislation

  • Halt All Lethal Trafficking of Fentanyl Act [PDF]
  • 9-8-8 Lifeline Cybersecurity Responsibility Act [PDF]
  • Block, Reporting, and Suspend Suspicious Shipments Act [PDF]
  • Protecting Health Care For All Patients Act [PDF]

Support Documents

  • Hearing Notice [PDF]
  • Hearing Memo [PDF]
  • Republican Staff Attendance [PDF]
  • Document for the Record: January 31, 2023 Letter of Support from the Autism society for the Protecting Health Care for All Patients Act (submitted by the Majority) [PDF]
  • Document for the Record: January 31, 2023 Letter of Support from Caring Across Generations for the Protecting Health Care for All Patients Act (submitted by the Majority) [PDF]
  • Document for the Record: January 31, 2023 Letter of Support from DREDF for the Protecting Health Care for All Patients Act (submitted by the Majority) [PDF]
  • Document for the Record: January 27, 2023 Letter of Support from the Epilepsy Foundation for the Protecting Health Care for All Patients Act (submitted by the Majority) [PDF]
  • Document for the Record: January 31, 2023 Letter of Support from the Muscular Dystrophy Association for the Protecting Health Care for All Patients Act (submitted by the Majority) [PDF]
  • Document for the Record: January 31,2023 Maimon QALY Submission (submitted by the Majority) [PDF]
  • Document for the Record: October 3, 2022 Letter from over 25 organizations representing people with disabilities on QALYs (submitted by the Majority) [PDF]
  • Document for the Record: January 31, 2023 Letter from the National Association of State Directors of Developmental Disabilities Services (NASDDDS) in support of the Protecting Health Care for All Patients Act (submitted by the Majority) [PDF]
  • Document for the Record: January 31, 2023 Letter from Partnership to Improve Patient Care Opposing QALYs (submitted by the Majority) [PDF]
  • Document for the Record: January 31, 2023 Letter of Support from Patient Rising Now for Protecting Health Care for All Patients Act (submitted by the Majority) [PDF]
  • Document for the Record: January 31, 2023 Letter of Support from the Arc for Protecting Health Care for All Patients Act (submitted by the Majority) [PDF]
  • Document for the Record: January 31, 2023 Cure SMA Letter in support of the Protecting All Health Care for Patients Act (submitted by the Majority) [PDF]
  • Document for the Record: January 31, 2023 Letter from the National Disability Rights Network (NDRN) for Support of the Protecting All Health Care for Patients Act(submitted by the Majority) [PDF]
  • Document for the Record: November 6, 2019 National Council on Disability Report, “Quality-Adjusted Life Years and the Devaluation of Life with Disability” (submitted by the Majority) [PDF]
  • Document for the Record: December 14, 2021 Letter from the Peace Officers Research Association of California in Support of the HALT Act (submitted by the Majority) [PDF]
  • Document for the Record: November 28, 2022 National Council on Disability Policy Brief, “Alternative to QALY-Based Cost-Effectiveness Analysis for Determining the Value of Prescription Drugs and Other Health Interventions” (submitted by the Majority) [PDF]
  • Document for the Record: February 1, 2023 Statement from Director Regina M. LaBelle, JD (submitted by the Minority) [PDF]
  • Document for the Record: March 8, 2017 Letter from the National Down Syndrome Society (submitted by the Minority) [PDF]
  • Document for the record: November 2022 Report, “Illicitly Manufactured Fentanyl As a Weapon of Mass Destruction: Rhetoric and Reality” (submitted by the Minority) [PDF]
  • Document for the Record: December 2021 Research Report from the National Institute of Drug Abuse on Medications to Treat Opioid Use Disorder (submitted by the Minority) [PDF]
  • Document for the Record: January 31, 2009 Department of Ethics Article on Principles for Allocation of Scarce Medical Interventions (submitted by Rep. Burgess) [PDF]
  • Document for the Record: March 27, 2020 ProPublica Article on People with Intellectual Disabilities May Be Denied Lifesaving Care (submitted by Rep. Burgess) [PDF]

Member Statements

  • The Honorable Cathy McMorris Rodgers [PDF]
  • The Honorable Brett Guthrie [PDF]
  • The Honorable Robert E. Latta [PDF]
  • The Honorable Richard Hudson [PDF] Added 02/22/2023 at 01:03 PM
  • The Honorable Anna Eshoo [PDF] Added 03/13/2023 at 05:17 PM
  • The Honorable Frank Pallone Jr. [PDF] Added 03/13/2023 at 05:17 PM

Hearing Record

  • Hearing Transcript [PDF] Added 04/04/2023 at 12:44 PM

First Published: February 21, 2023 at 05:08 PM
Last Updated: February 8, 2024 at 11:03 AM