Hearing: “The Path Forward: Advancing Treatments and Cures for Neurodegenerative Diseases”

Subcommittee on Health (Committee on Energy and Commerce)

Thursday, July 29, 2021 (11:00 AM)

2123 RHOB
Washington, D.C.

Witnesses

Panel one

Dr. Patrizia Cavazzoni
Director, Center for Drug Evaluation and Research, U.S. Food and Drug Administration

Added 07/27/2021 at 12:22 PM
  • Witness Statement [PDF] Added 07/28/2021 at 01:52 PM
  • Response to Questions for the Record [PDF] Added 06/09/2022 at 12:10 PM
  • Witness Truth in Testimony [PDF] Added 08/05/2021 at 01:02 PM
  • Witness Biography [PDF] Added 08/05/2021 at 01:02 PM

Dr. Richard J. Hodes
Director, National Institute on Aging, National Institutes of Health

Added 07/27/2021 at 12:22 PM
  • Witness Statement [PDF] Added 07/28/2021 at 01:52 PM
  • Response to Questions for the Record [PDF] Added 06/09/2022 at 12:10 PM
  • Witness Truth in Testimony [PDF] Added 08/05/2021 at 01:02 PM
  • Witness Biography [PDF] Added 08/05/2021 at 01:02 PM

Dr. Walter J. Koroshetz
Director, National Institute of Neurological Disorders and Stroke, National Institutes of Health

Added 07/27/2021 at 12:22 PM
  • Witness Statement [PDF] Added 07/28/2021 at 01:52 PM
  • Response to Questions for the Record [PDF] Added 06/09/2022 at 12:10 PM
  • Witness Truth in Testimony [PDF] Added 08/05/2021 at 01:02 PM
  • Witness Biography [PDF] Added 08/05/2021 at 01:02 PM

Panel two

Dr. Jinsy Andrews
Director of Neuromuscular Clinical Trials, Neurological Institute of New York, Associate Professor of Neurology, Columbia University Vagelos College of Physicians and Surgeons

Added 07/27/2021 at 12:22 PM
  • Witness Statement [PDF] Added 07/27/2021 at 12:22 PM
  • Response to Questions for the Record [PDF] Added 06/09/2022 at 12:10 PM
  • Witness Truth in Testimony [PDF] Added 08/05/2021 at 01:02 PM
  • Witness Biography [PDF] Added 08/05/2021 at 01:02 PM

Ms. Kala Booth
Huntington’s Disease Caregiver and Patient

Added 07/27/2021 at 12:22 PM
  • Witness Statement [PDF] Added 07/27/2021 at 12:22 PM
  • Witness Truth in Testimony [PDF] Added 08/05/2021 at 01:02 PM

Dr. Merit Cudkowicz
Director, Sean M. Healy and AMG Center for ALS, Chief, Neurology Department, Massachusetts General Hospital, Julianne Dorn Professor of Neurology, Harvard Medical School

Added 07/27/2021 at 12:22 PM
  • Witness Statement [PDF] Added 07/28/2021 at 08:20 AM
  • Witness Truth in Testimony [PDF] Added 08/05/2021 at 01:02 PM
  • Witness Biography [PDF] Added 08/05/2021 at 01:02 PM

Dr. Cartier Esham
Executive Vice President, Emerging Companies, Senior Vice President, Science and Regulatory Affairs, Biotechnology Innovation Organization

Added 07/27/2021 at 12:22 PM
  • Witness Statement [PDF] Added 07/27/2021 at 09:15 PM
  • Response to Questions for the Record [PDF] Added 06/09/2022 at 12:10 PM
  • Witness Truth in Testimony [PDF] Added 08/05/2021 at 01:02 PM
  • Witness Biography [PDF] Added 08/05/2021 at 01:02 PM

Ms. Yvonne Latty
Caregiver

Added 07/27/2021 at 12:22 PM
  • Witness Statement [PDF] Added 07/27/2021 at 12:22 PM
  • Witness Truth in Testimony [PDF] Added 08/05/2021 at 01:02 PM

Mr. Brian Wallach
Co-Founder, I AM ALS

Added 07/27/2021 at 12:22 PM
  • Witness Statement [PDF] Added 07/27/2021 at 09:16 PM
  • Witness Truth in Testimony [PDF] Added 08/05/2021 at 01:02 PM
  • Witness Biography [PDF] Added 08/05/2021 at 01:02 PM

Support Documents

  • Hearing Notice [PDF]
  • Briefing Memo [PDF] Added 07/27/2021 at 12:22 PM
  • Document for the Record - A statement from the Global Down Syndrome Foundation [PDF] Added 08/05/2021 at 01:02 PM
  • Document for the Record - A statement from the American Academy of Neurology [PDF] Added 08/05/2021 at 01:02 PM
  • Document for the Record - A statement from Dr. Neil Thakur, Chief Mission Officer of the ALS Association [PDF] Added 08/05/2021 at 01:02 PM
  • Document for the Record - A statement from the Alzheimer’s Impact Movement [PDF] Added 08/05/2021 at 01:02 PM
  • Document for the Record - Testimony from the Centers for Disease Control and Prevention [PDF] Added 08/05/2021 at 01:02 PM
  • Document for the Record - A statement from the Neuroscience Working Table [PDF] Added 08/05/2021 at 01:02 PM
  • Document for the Record - A statement from Representative Jeff Fortenberry of Nebraska [PDF] Added 08/05/2021 at 01:02 PM
  • Document for the Record - A statement from Jamie Rose Caglia Berry [PDF] Added 08/05/2021 at 01:02 PM
  • Document for the Record - A statement from Mayuri Saxena, I AM ALS Legislative Affairs Committee Member [PDF] Added 08/05/2021 at 01:02 PM
  • Document for the Record - A collection of testimonials from individuals impacted by ALS provided by I AM ALS [PDF] Added 08/05/2021 at 01:02 PM
  • Document for the Record - A statement from the Rare Disease Company Coalition [PDF] Added 08/05/2021 at 01:02 PM
  • Document for the Record - A statement from Dr. Matthew Rizzo, Chair of the American Brain Coalition [PDF] Added 08/05/2021 at 01:02 PM

Member Statements

  • Opening Statement of Rep. Frank Pallone, Jr., Chairman of the Full Committee [PDF] Added 08/05/2021 at 01:02 PM
  • Opening Statement of Rep. Anna G. Eshoo, Chairwoman of the Subcommittee on Health [PDF] Added 08/05/2021 at 01:02 PM
  • Opening Statement of Rep. Cathy McMorris Rodgers, Ranking Member of the Full Committee [PDF] Added 08/05/2021 at 01:02 PM
  • Opening Statement of Rep. Brett Guthrie, Ranking Member of the Subcommittee on Health [PDF] Added 08/05/2021 at 01:02 PM

Hearing Record

  • Hearing: Member Roster [PDF] Added 08/05/2021 at 01:02 PM
  • Preliminary Transcript [PDF] Added 08/05/2021 at 01:02 PM

First Published: July 22, 2021 at 02:34 PM
Last Updated: June 9, 2022 at 12:10 PM


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